-
Welcome to Holland
- Something I read to cheer up a little bit when I'm feeling down. I never tire of reading this.
-
11q Research &
Resource Homepage
- Support group for Shota's syndrome
-
The Fragile Website
- Valuable information on the 11q syndrome -- a medical checklist, a database of publications on the syndrome, links to helpful
websites, etc. I have given Shota's doctors all the information I found on this site!
-
Chromosome 22 Central
- The website for anyone dealing with chromosome 22 related disorders,
created and maintained by my dear friend Stephanie St-Pierre
-
MUMS--Mothers United for Moral Support
- Matching for parents of children with rare disorders/diseases
Family Village
- Informational resources on specific diagnoses, adaptive products and technology, health issues, disability-related media and literature, and much, much more!
-
PHP-Parents Helping Parents
- The homepage of a parent-directed family resource center. Very comprehensive and informative!
-
The Disability Resource
- Books, live chat, create your own homepage, etc. Lots of resources.
-
S.O.F.T.
- Support Organization For Trisomy 13 & 18 and Related Disorders
-
The Chromosome 18 Registry & Research Society
- The homepage for people with anomalies of chromosome 18.
|